【看中國2020年10月12日訊】「我的努力是為了你。」這是英國的一位6歲女孩用行動對生命的解讀。她患有罕見的疾病,就在她即將失去行走能力的時候,這位小小的勇士拄著雙拐一步一步的完成了長達600里的馬拉松,募捐善款只為幫助跟她一樣的人。
這位名叫Carmela Chillery-Watson的6歲女孩向世人證明,即使患上這種罕見的運動肌肉失調症,也無法阻止她獲得任何成就。
It's now £12500 and moving fast. Well done Carmela for completing your walk. A well earned rest for our very own Wonder Woman Carmela @ChilleryWatson and her super duper Wonder Woman mum Lucy. Keep giving please https://t.co/4UtC3jOKWu @MDUK_News @GalGadot @LillyAspell https://t.co/FDZt0P3VfL
— Stephen Mooney (@MDUK_Stephen) September 30, 2020
卡梅拉(Carmela)患有一種罕見的肌肉萎縮狀況,在出生沒多久就被判定患有「核纖層蛋白相關先天性肌失養症」(LMNA-related CMD),這種疾病會導致呼吸功能不全、頭部或軀幹功能缺損、軀幹肌肉無力、心律不整等症狀,也因為疾病關係,她的腿部肌肉越來越無力以及虛弱,其行走能力不斷下降,她現在已經無法行走超過5分鐘。
And that’s a wrap! Carmela has completed her heroic 300km in 30 days #WonderWomanWalk. A fantastic £12k has been raised with the help of @GalGadot and all your donations. Thanks to @rhubarbchairs & Batman for making the finale one that Carmela won't forget! @ChilleryWatson https://t.co/SLsbuWqHNF
— MuscularDystrophyUK (@MDUK_News) September 30, 2020
儘管如此,卡梅拉仍然帶著枴杖和她的小狗,決定參加「馬拉松挑戰」,在30天內跨度300公里。她這樣做是為了為一家名為「英國肌肉萎縮症」的組織籌集資金,總計達6,000英鎊。
This is the moment the West Country's own Wonder Woman six-year-old Carmela @ChilleryWatson finished her challenge of walking 300km. She's raised an incredible £12,000 spurred on by @GalGadot and @LillyAspell
— ITV News West Country (@itvwestcountry) September 30, 2020
Read about her amazing challenge here: https://t.co/wFo9yqvJFM pic.twitter.com/1485d1jHUA
Twitter網頁以她的名字開始,記錄了她步行的每一天。她打扮成「神奇女俠」的模樣來鼓勵自己不斷前行,這恰好也是她最喜歡的超級英雄。而真正的神力女超人蓋兒.加朵得知此事後,也承諾捐款3442英鎊,希望為肌肉萎縮症患者盡一份心力,同時她也說:「真的很想見見這位小小女超人!」
My real wonder girl! Wow this video blew my mind. You’re a true hero. So inspiring and strong. I hope one day we get to meet each other. Until then I’m sending you lots of love and a big big hug!!! https://t.co/6K13LZI18y
— Gal Gadot (@GalGadot) September 9, 2020
卡梅拉的努力幫助她籌集到了14602英鎊。她說:「謝謝大家幫助我走了這麼長的路,希望能用這筆錢來幫助更多跟我一樣的人!」